通过Reddit了解患者对流症的体验:定性分析
Aurora J Grutman1, Sara Perelmuter2, Abigail Perez3
1Johns Hopkins School of Medicine, Baltimore, MD, United States.
JMIR infodemiology
|March 6, 2025
概括
在线讨论显示,病患者寻求支持并分享经验,突出了患者现实和医学理解之间的差距. 这项研究强调改善临床医生的意识和患者教育,以更好地照顾vulvodynia.
科学领域:
- 专注于慢性疼痛疾病的医学研究.
- 社会科学研究分析在线患者社区.
- 数字健康和患者报告的结果.
背景情况:
- Vulvodynia是一种慢性阴道疼痛,影响了美国人口的很大一部分,但诊断和治疗仍然具有挑战性.
- 患者经常经历耻辱和医疗不确定性,导致他们在网上论坛上寻求信息和支持.
- 雷迪特 (Reddit) 作为一个有价值的平台,可以访问现实世界的患者观点,通常在临床环境中错过.
研究的目的:
- 为了分析与vulvodynia相关的Reddit内容.
- 探索个体如何描述他们的症状,治疗方法和个人经验与vulvodynia.
- 了解在线社区中共享的患者观点.
主要方法:
- 在2023年5月的"r/vulvodynia"和"r/vestibulodynia"分类的线程分析.
- 线程根据受欢迎程度 (upvotes) 排名,从每个子reddit中提取了前70名.
- 诱导性定性分析和情绪分析被用来识别主题和态度.
主要成果:
- 在分析的140个线程中,55%的线程表现出负面态度,35.7%的线程寻求信息,64.3%的线程提供同行支持.
- 关键主题包括症状 (61.4%),治疗 (59.3%) 和性 (33.6%).
- 关于治疗和表现的讨论与积极的态度相关,而删除和症状通常具有负面的情绪. 讨论的三种治疗方法符合临床指导方针,但患者也报告了对医疗专业人员的丧.
结论:
- 这项研究是第一个检查Reddit关于vulvodynia的讨论,揭示了患者体验和提供者理解之间的断开.
- 调查结果强调需要加强患者教育,提高临床医生对vulvodynia护理中的心理社会因素的认识.
- 在线社区为满足患者需求和促进相互支持提供了洞察力.
关键词:
在Reddit上,我们可以看到Reddit是什么.提高健康识字能力盆腔疼痛 盆腔疼痛 盆腔疼痛性健康性健康性健康性健康性健康这种情况是 vestibulodynia.这种疾病是vulvodynia.更多相关视频
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