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代表那些有智力/发育障碍的人.
Barbie Vartanian1, Steve Perlman2, Rick Rader3
1Director, Oral Health Advocacy and Policy Initiatives, New York University College of Dentistry, New York, New York.
智力/发育残疾 (IDD) 的人故意被排除在医疗服务不足人口 (MUP) 状态之外. 这种指定对于公平的医疗保健准入和对自闭症和唐氏综合征等疾病患者的资源分配至关重要.
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科学领域:
- 公共卫生 公共卫生
- 关于残疾人的研究.
- 医疗保健政策 医疗保健政策
背景情况:
- 智力/发育障碍 (IDD) 个体在获得医疗保健方面面临系统性障碍.
- 目前的政府指定并不充分认识到IDD人口的独特医疗保健需求.
- 术语IDD涵盖了各种疾病,包括自闭症,脑和唐氏综合征.
研究的目的:
- 倡导将智力/发育残疾 (IDD) 个体重新归类为医疗服务不足的人群 (MUP).
- 突出IDD社区被故意排除在MUP地位之外及其影响.
- 呼吁改变政策,确保所有患有IDD的人均获得公平的医疗保健.
主要方法:
- 本研究是一篇政策分析和倡导文章.
- 它将智力/发育障碍 (IDD) 定义为广泛,包括各种遗传综合征.
- 作者使用强烈的修辞语言来强调问题的紧迫性.
主要成果:
- 目前的指定系统有意将IDD患者从MUP身份中排除在外.
- 这种排斥导致医疗保健资源和IDD社区的支持不足.
- 政策改革至关重要,以解决这种不平等问题.
结论:
- 智力/发育残疾人 (IDD) 应该被正式指定为医疗服务不足的人群 (MUP).
- 迫切需要改变政策,以确保IDD社区获得公平的医疗保健和资源.
- 家庭,支持网络和医疗专业人员之间的合作对于推动这种变化至关重要.
