亚托邦性皮肤炎的咨询需求:关于怀孕和治疗的观点
Catalina H Skovsgård1, Anne Sofie Frølunde2, Mette Deleuran1
1Department of Dermatology, Aarhus University Hospital, Aarhus, Denmark; Aarhus University, Aarhus, Denmark.
Acta dermato-venereologica
|March 7, 2025
概括
患有亚托邦性皮肤炎 (AD) 的成年人通常对计划生育和怀孕 (FPP) 信息有未满足的需求. 许多患者担心怀孕和哺乳期间的AD遗传性和治疗安全性.
科学领域:
- 皮肤病学 皮肤病学
- 生殖健康 生殖健康
- 患者教育 患者教育
背景情况:
- 亚托皮炎 (AD) 影响5-8%的成年人,包括许多生殖年龄.
- 患有阿尔茨海默病的患者可能面临与计划生育,怀孕和母乳养 (FPP) 相关的挑战.
研究的目的:
- 调查皮肤科医生向AD患者提供FPP信息的情况.
- 识别AD患者对怀孕和母乳养的担忧.
主要方法:
- 横截面调查问卷研究.
- 涉及121名在丹麦接受局部或全身治疗的AD成人患者 (18-45岁).
主要成果:
- 88.4%的人担心阿尔茨海默病的遗传性;29.8%的人担心治疗的治疗性.
- 37.1%的女性担心母乳养问题.
- 只有三分之一的人与皮肤科医生讨论了FPP;由于AD,15%的人生少了孩子.
结论:
- 成年阿尔茨海默病患者对FPP有重大未满足的信息需求.
- 结构化沟通可以改善FPP规划,并解决患者的担忧.
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