构建和开发一个工具 (PANDEM-2仪表板) 加强流行病管理:参与式设计研究研究
Carlos Tighe1, Lem Ngongalah2, Alexis Sentís3
1Insight, SFI Research Centre for Data Analytics, University of Galway, Galway, Ireland.
JMIR public health and surveillance
|March 7, 2025
概括
PANDEM-2仪表板通过标准化,交互式数据可视化来增强流行病管理. 它解决了数据缺口和隐私问题,改善了对未来健康危机的决策.
科学领域:
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
- 数据科学数据科学数据科学
背景情况:
- COVID-19大流行突显了实时数据共享和决策中的关键差距.
- 数据保护,互操作性和标准化问题阻碍了有效的流行病信息管理.
- 可定制的数据可视化对于做出明智的公共卫生决策至关重要.
研究的目的:
- 开发PANDEM-2仪表板,这是一个标准化,互动的平台,用于流行病管理决策.
- 概述参与式方法,让专家最终用户参与仪表板开发.
- 在流行病数据系统中解决隐私,数据保护和伦理考虑.
主要方法:
- 审查了25个公共COVID-19仪表板,以创建可视化目录.
- 通过研讨会和咨询,从13个欧盟国家的20名专家收集了用户需求.
- 采用参与式设计,对隐私和伦理风险进行代影响评估,并根据最终用户的反改进了平台.
主要成果:
- PANDEM-2包含了关键变量,如病例率,死亡率,医院资源,测试和疫苗接种率,并优先考虑现有数据.
- 确定了联系人追踪和死亡率的数据缺口,强调需要改进数据收集.
- 用户反强调了需要多样化的可视化,定制报告和分析,跨越不同的时间框架和政府干预.
结论:
- PANDEM-2为流行病的准备和应对提供了一个可适应的,用户友好的平台.
- 数据互操作性,跨境协作和定制的IT工具对于强大的健康危机管理至关重要.
- 该研究提供了对开发有效的IT解决方案的见解,以为未来的流行病做好准备.
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