实施PEIR框架和PEIRS-22以促进改善和可持续的患者参与OMERACT
Caitlin Jones1, Clayon Hamilton2, Peter Tugwell3
1Institute for Musculoskeletal Health, University of Sydney and Sydney Local Health District, 10N KGV Building, Missenden Road, Camperdown, New South Wales, Australia 2050.
根据患者参与研究规模 (PEIRS-22) 的数据,患者参与风湿学研究具有意义. 确定了改善患者参与的领域,以加强未来的合作.
科学领域:
- 风湿病学研究的研究.
- 让患者参与到研究中.
- 结果测量结果的测量.
背景情况:
- OMERACT (风湿病学的结果测量) 促进合作,以开发核心结果集.
- 患者参与研究量表 (PEIRS-22) 衡量患者参与度.
研究的目的:
- 使用PEIRS-22分数描述OMERACT患者参与度.
- 在OMERACT患者研究合作伙伴 (PRP) 组中评估PEIRS-22的有效性.
主要方法:
- 管理了PEIRS-22到OMERACT的PRP. 这是一个很好的例子.
- 将PEIRS-22分数与自我评价参与度进行比较.
- 使用开放式问题来调查工具的有效性.
主要成果:
- 整体患者参与是有意义的,与自我报告的参与相关.
- 确定需要改进的领域:方便性,效益,团队环境,决策参与,平等伙伴关系和支持.
结论:
- 在OMERACT上下文中,PEIRS-22是有效的.
- 观察到令人满意的有意义的患者参与水平.
- PEIRS-22将指导结构化的患者参与OMERACT的演变.
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