自闭症儿童的生活质量和社会成本:一个探索性比较性诊断前后研究
Leontine W Ten Hoopen1,2, Pieter F A de Nijs3, Kirstin Greaves-Lord4,5
1Department of Child and Adolescent Psychiatry/Psychology, Erasmus MC, Sophia Children's Hospital, P.O. Box 2040, 3000 CA, Rotterdam, The Netherlands. l.tenhoopen@erasmusmc.nl.
Journal of autism and developmental disorders
|March 9, 2025
概括
及时诊断儿童的自闭症可能会改善生活质量并降低社会成本. 虽然诊断后总成本略有下降,但医疗保健费用下降了一半,转向精神卫生服务.
科学领域:
- 发展心理学 发展心理学
- 公共卫生 公共卫生
- 卫生经济学 卫生经济学
背景情况:
- 自闭症谱系障碍 (ASD) 影响儿童的生活质量,并造成社会成本.
- 有限的数据存在于自闭症诊断前后的成本和服务利用变化.
研究的目的:
- 探索在诊断前和诊断后荷兰自闭症儿童的与健康相关的服务利用率和成本.
- 从社会角度评估生活质量,教育需求和缺勤率的变化.
主要方法:
- 研究包括36名荷兰儿童 (2-10岁) 患有临床转诊自闭症.
- 护理人员提供的关于服务利用 (医疗保健,青少年护理,学校指导) 和成本的数据.
- 评估孩子的生活质量 (EQ-5D-3L),教育需求,以及诊断前后缺勤.
主要成果:
- 总年度成本显示,从6513欧元下降到5060.0欧元,这一下降并不显著.
- 诊断后,医疗保健费用减少了一半,从体质保健转向精神保健.
- 儿童的生活质量没有显著改善 (0.58至0.66),日常活动问题较少,缺学率较低.
结论:
- 及时诊断自闭症对于明智的干预和治疗计划至关重要.
- 早期澄清可以改善生活质量,优化服务分配,并可能降低社会成本.
- 诊断前的成本独立预测了诊断后的成本,强调了早期支持的重要性.
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