社区参与唐氏综合征的成年人:一个范围审查
Sook Meng Lee1,2,3, Nicholas F Taylor4,5, Catherine Said6,7,8
1Olga Tennison Autism Research Centre, School of Psychology and Public Health, La Trobe University, Bundoora, Australia.
Disability and rehabilitation
|March 10, 2025
概括
对于患有唐氏综合征的成年人来说,社区参与往往受到限制,尽管他们从事休活动. 个人和环境因素极大地影响他们融入社区.
科学领域:
- 关于残疾人的研究.
- 社会包容性研究 社会包容性研究
- 公共卫生 公共卫生
背景情况:
- 社区参与对于社会包容和福祉至关重要.
- 政府政策旨在加强包括唐氏综合征在内的残疾人的社区参与.
研究的目的:
- 综合现有关于唐氏综合征成人社区参与的研究.
- 确定影响社区参与这一群体的因素.
主要方法:
- 在多个数据库 (Medline,EMBASE,PsycINFO,CINAHL) 中进行了全面的文献搜索.
- 报告遵循了PRISMA-ScR的指导方针.
- 证据综合利用了国际功能,残疾和健康分类 (ICF) 和参与结构家族框架.
主要成果:
- 包括26项涉及12461名参与者的研究.
- 许多研究没有明确地定义或检查社区参与作为一个独特的概念.
- 患有唐氏综合征的成年人表现出多样化的参与,特别是在娱乐活动中,但许多人的参与是有限的.
- 主要影响因素包括个人因素 (年龄,适应功能) 和环境方面 (父母的支持,社会/物流援助,居住).
结论:
- 这些发现增强了对患有唐氏综合征的成年人社区参与的理解.
- 确定未来研究和有针对性的干预措施的具体领域.
- 旨在通过加强社区包容性来改善患有唐氏综合征的成年人的健康和福祉.
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