在被诊断患有多发性硬化症的患者中,一般人群对婚姻的耻辱化的影响:一个横截面研究
Nazgol Behgam1,2, Amirhossein Sahraian1,2, Zahra Ebadi1
1Multiple Sclerosis Research Center, Neuroscience Institute, Tehran University of Medical Sciences, Tehran, Iran.
BMC neurology
|March 11, 2025
概括
社会耻辱对患有多发性硬化症 (MS) 的人的婚姻决定产生重大影响. 在伊朗,大多数未婚年轻人表现出不愿意嫁给患有多发性硬化症的人,因为他们担心残疾.
科学领域:
- 神经学 神经学
- 社会科学 社会科学 社会科学
- 公共卫生 公共卫生
背景情况:
- 多发性硬化症 (MS) 是一种慢性中枢神经系统疾病,影响年轻成年人.
- 与多发性硬化症相关的社会耻辱带来了重大的心理社会挑战.
- 有限的研究存在于MS相关的耻辱对婚姻决策的影响.
研究的目的:
- 确定对多发性硬化症 (MS) 的社会耻辱的普遍性.
- 评估伊朗未婚人士是否愿意与MS患者结婚.
- 在MS的背景下探索影响婚姻决策的因素.
主要方法:
- 一项涉及343名伊朗20-40岁未婚人士的横截面研究.
- 通过研究人员设计的问卷和面对面的采访收集的数据.
- 评估了对多发性硬化症的理解,对结婚多发性硬化症患者的看法以及污名化程度.
主要成果:
- 77.6%的参与者不愿意与患有多发性硬化症的人结婚,理由是身体残疾问题.
- 还报告了关于与家庭 (父母,兄弟姐妹,亲戚) 中患有多发性硬化症的人结婚的犹.
- 医疗保健专业人员的耻辱感较低;年轻人和某些种族群体的耻辱感较高.
结论:
- 调查结果强调了MS周围的重大社会耻辱及其对婚姻的影响.
- 提供了开发干预措施的见解,以减轻MS在社会和婚姻环境中的耻辱感.
- 提高认识和支持性干预可以促进MS患者的包容性.
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