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Updated: May 23, 2025

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
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护理人员和多学科团队成员对杜氏肌肉发育不良症共享决策的观点:一种定性研究

Elise Schoefs1, Thomas Desmet2,3, Evelyn Lerinckx2,4

  • 1Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium. elise.schoefs@kuleuven.be.

Orphanet journal of rare diseases
|March 11, 2025
PubMed
概括

共享决策 (SDM) 对于杜氏肌肉缩症 (DMD) 护理至关重要. 加强信息获取和开发支持工具是改善患者及其家人的SDM的关键.

关键词:
杜申尼肌肉发育不良症是什么信息需求 信息需求共享决策的跨专业模式.多学科团队是一个多学科团队.患者的决策辅助工具患者的参与度 患者的参与度

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