识别晚期癌症患者的息家庭护理需求:一个横截面研究
Xiaocheng Liu1, Hui Liu2, Wenjuan Ying3
1Pediatric Neurorehabilitation Department, Shenzhen Longhua Maternity and Child Healthcare Hospital, Shenzhen, China.
Frontiers in psychiatry
|March 12, 2025
概括
晚期癌症患者有显著的息性家庭护理需求,特别是财务和心理问题. 解决这些需求对于改善家庭息护理环境中的生活质量至关重要.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 家庭息护理提供持续,有效和及时的患者支持.
- 识别息性家庭护理需求是一个临床挑战.
- 关于息护理需求和家庭生活质量的特征的研究有限.
研究的目的:
- 为了确定晚期癌症患者的息性家庭护理需求.
- 探索影响满足这些需求的因素.
主要方法:
- 在四个中国城市 (2020年5月 - 2021年11月) 进行了横截面研究.
- 利用了"息治疗中的问题和需求"的修订版和欧洲癌症研究和治疗组织"生活质量调查问卷-C30.
- 统计分析包括描述性统计,威尔科克森等级总和测试,斯皮尔曼rho相关性,独立t测试和多重线性回归.
主要成果:
- 息家庭护理需要以身体症状,家庭健康服务和心理问题为中心.
- 首要需求包括财务问题 ("由于疾病而增加的额外支出" - 75.9%),心理困扰 ("恐惧恶化" - 72.8%),以及对痛苦的恐惧 ("恐惧身体痛苦" - 67.9%).
- 卡诺夫斯基表现状态和生活质量维度解释了53.5%的息家庭护理需求.
结论:
- 息性家庭护理需求与患者的生活质量和财务困难有关.
- 这些发现可以为息性家庭护理服务框架提供信息.
- 结果有助于确定针对患者的有针对性的干预措施.
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