一项定性研究探讨了支持智力和发育障碍成年人的家长照顾者的方法
Kelli A Sanderson1, Meghan M Burke2,3, Jennifer L Bumble4
1Advanced Studies in Education and Counseling, California State University Long Beach, Long Beach, California, USA.
概括
智力和/或发育障碍的成年人的家长照顾者需要有形,社会和导航支持. 经济补偿和增强的服务对于有效的护理和家庭福祉至关重要.
科学领域:
- 关于残疾人的研究.
- 护理人员支持护理人员支持
- 家庭福利 家庭福利
背景情况:
- 父母通常是智力和/或发育障碍的成年儿童的主要照顾者.
- 照顾可以带来好处,但也会给父母照顾者和他们的成年孩子带来负面影响.
- 了解护理人员的需求对于确保有效和可持续的护理至关重要.
研究的目的:
- 确定父母需要的基本支持,以有效地照顾他们的智力和/或发育障碍的成年孩子.
- 为旨在改善父母护理人员及其家庭生活的政策和实践提供信息.
主要方法:
- 分析了来自315名智力和/或发育障碍成年人父母的全国调查的定性数据.
- 采用主题分析来识别写入响应中的反复出现的模式和主题.
主要成果:
- 出现了四个主要主题:有形支持的需要,社会支持,协助导航残疾人服务和资源,以及帮助未来规划.
- 照顾父母的护理人员表示,他们显然需要实际,情感和信息方面的帮助.
- 导航复杂的残疾系统和规划未来是发现的重大挑战.
结论:
- 建议为照顾家长的父母提供经济补偿,以减轻经济压力.
- 加强残疾人服务和资源对于更好地支持家庭至关重要.
- 为家庭创建专门的空间来连接和共享资源,可以培养更强大的支持网络.
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