共同撰写和报告生活经验参与心理健康和/或物质研究:一种定性研究和指导文件
Natasha Y Sheikhan1,2, Kerry Kuluski1,3, Melissa Hiebert2
1Institute of Health Policy, Management, and Evaluation, University of Toronto, Toronto, Canada.
概括
这项研究制定了报告与有生活经验的人和家庭参与心理健康研究的指导方针. 该指南促进了研究报告的透明度和问责制.
科学领域:
- 心理健康研究 心理健康研究
- 药物使用研究研究 药物使用研究
- 患者和公众参与.
背景情况:
- 越来越多地强调让有生活经验的人和家庭 (PWLE/F) 参与心理健康和物质使用研究.
- 在已发表的研究论文中不充分报告PWLE/F参与.
研究的目的:
- 从PWLE/F和研究人员的角度确定报告PWLE/F参与的关键组件.
- 为PWLE/F参与心理健康和物质使用研究制定实用报告指南文件.
主要方法:
- 使用虚拟采访对13名PWLE/F和12名加拿大研究人员进行定性描述研究.
- 采访数据的模板分析,以确定与报告任务相关的主题.
- 根据研究结果制定报告指南文件.
主要成果:
- 参与者强调需要灵活,反思性和量身定制的指导,以提高透明度,问责制和学习.
- 创建了一个报告指南文件,平衡灵活性与标准化,并纳入反射性实践.
- 制定了与PWLE/F合作伙伴共同撰写的具体指南.
结论:
- 开发的指导文件作为作者有效报告PWLE/F参与的路线图.
- 鼓励研究小组利用指南,改善报告参与心理健康和物质使用研究的情况.
- 在整个研究过程中,从概念到手稿完成,PWLE/F都参与了研究.
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