在中国等待移植的末期病患者的实际需求:一项定性研究
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Menglin Yuan1, Xin Zhou1, Rui Luo1
1Zhongnan Hospital of Wuhan University, Institute of Hepatobiliary Diseases of Wuhan University, Transplant Center of Wuhan University, National Quality Control Center for Donated Organ Procurement, Hubei Key Laboratory of Medical Technology on Transplantation, Hubei Clinical Research Center for Natural Polymer Biological Liver, Hubei Engineering Center of Natural Polymer-based Medical Materials, Wuhan, Hubei, China.
Patient education and counseling
|March 13, 2025
概括
等待移植的患者需要情感,信息,医疗和社会支持. 了解他们的语言揭示了这些关键需求,以便更好地照顾和准备.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 移植医学 移植医学
- 以患者为中心的护理
背景情况:
- 对中国等待移植的患者的具体需求的了解有限.
- 患者语言在确定有效护理和咨询的未满足需求方面的重要性.
研究的目的:
- 探索中国移植等候名单上的患者多方面的需求.
- 分析患者的语言,了解他们在等待期间的支持需求.
主要方法:
- 定性研究涉及采访32名参与者 (22名在等待名单上,10名接受者).
- 数据使用Colaizzi的主题识别的七步方法进行分析.
主要成果:
- 出现了四个主要主题:情感,信息,医疗和社会支持需求.
- 确定了86个被参与者验证的编码陈述,突出了不同的患者需求.
结论:
- 解释患者的语言线索提供了对患者需求的细微了解.
- 移植专业人员应该认识到动态的情感支持需求,并评估信息,医疗和社会支持需求.
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