家长的痛苦与儿童息治疗中的代理症状报告之间的关系
Douglas L Hill1, Russell T Nye2, Jackelyn Y Boyden3
1Justin Ingerman Center for Palliative Care (D.L.H., R.T.N., C.F.), The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Journal of pain and symptom management
|March 13, 2025
概括
父母的心理困扰显著影响了儿科息护理中的症状报告. 这一发现对于准确的症状评估和对无法自我报告的儿童的护理计划至关重要.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 心理上的痛苦 心理上的痛苦
- 症状报告 症状报告
背景情况:
- 儿科息护理 (PPC) 往往依赖于父母的代理报告来评估症状,因为患者无法自我报告.
- 父母心理困扰对这些代理症状报告的影响在很大程度上仍未被探索.
研究的目的:
- 量化家长心理困扰对患者症状评分的影响,由代理报告.
- 分析症状报告模式,使用来自照顾同一个孩子的父母对的数据.
主要方法:
- 一项前性队列研究,涉及PPC儿童的父母.
- 使用纪念症状评估尺度用于儿童症状和Kessler-6用于家长的痛苦.
- 采用回归建模来评估家长痛苦和患者症状得分之间的关联,无论是整体还是家庭内部.
主要成果:
- 增加的父母痛苦与更高的代理报告的患者症状得分相关 (1点的痛苦增加与1.07点的症状得分增加相关).
- 在家庭中,父母痛苦得分的差异预测了患者报告症状得分的差异 (1点的痛苦差异与0.33点的症状差异相关).
结论:
- 父母的心理困扰显然影响了儿科息护理中的代理症状报告.
- 这些发现需要在临床实践中考虑父母的福祉,以及对症状评估的未来研究.
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