家庭在为患有脑的孩子提供护理时的策略:一项定性研究
Silje Askeland1, Veslemøy Guise1, Karina Aase1,2
1SHARE - Centre for Resilience in Healthcare, Faculty of Health Sciences, University of Stavanger, Stavanger, Norway.
脑 (CP) 儿童的家庭使用专家知识和积极参与来导航复杂的服务. 支持这些家庭策略是实现以家庭为中心的护理的关键.
科学领域:
- 儿科康复儿童康复中心
- 家庭为中心的护理模式
- 医疗护理导航 医疗护理导航
背景情况:
- 患有医疗复杂性的儿童,如脑 (CP),需要跨多个部门的协调服务.
- 家庭通常承担着导航这些复杂的服务系统的首要责任.
- 对于家庭用来管理这些服务的具体策略的理解有限.
研究的目的:
- 探索和理解家庭用来为患有脑的孩子寻找服务的策略.
- 确定家庭如何管理与医疗保健,教育和社会服务提供者的互动.
- 了解家庭驱动的服务协调方法.
主要方法:
- 与六个家庭进行了半结构化采访,其中包括父母和8-12岁的儿童CP.
- 在涉及家长和服务提供商的多学科学校协调会议上进行观察.
- 采用定性研究方法收集深入的家庭经验.
主要成果:
- 父母对孩子的病情和可用的服务有了专业知识.
- 家庭作为主动代理人积极参与孩子的照顾和日常管理.
- 这些策略使家庭能够为提供适合其需求的以家庭为中心的服务做出贡献.
结论:
- 家庭利用各种策略来有效地导航复杂的服务系统.
- 这些策略使家庭能够明确护理需求,并促进个性化服务提供.
- 支持家庭的导航策略对于培养真正以家庭为中心的护理方法至关重要.
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