使用以人为中心的设计与患者咨询委员会共同设计患者参与工具:成功与挑战
Madelyn Knaub1,2, Santiago Leon3, Surakshya Pokharel1,2
1Ward of the 21st Century, University of Calgary, Calgary, Canada.
概括
以人为中心的设计 (HCD) 有效地与患者研究合作伙伴 (PRP) 共同构建患者参与工具. 这种方法提高了医疗保健工具的适用性,尽管达成共识需要明确的时间表和透明的方法来实现未来的研究.
科学领域:
- 医疗保健创新 医疗保健创新
- 患者参与策略 患者参与策略
- 在健康研究中以人为中心的设计 (HCD)
背景情况:
- 共建是以患者为导向的研究的一个关键组成部分,旨在通过合作改进医疗保健工具.
- 以人为中心的设计 (HCD) 为开发以用户为中心的医疗保健解决方案提供了一个结构化的方法.
研究的目的:
- 概述使用HCD与患者研究合作伙伴 (PRP) 共同构建患者参与工具的过程.
- 识别和分析HCD共建过程中遇到的成功和挑战.
主要方法:
- 一个以人为中心的设计 (HCD) 工作组,包括九名PRP和专家,由患者咨询委员会 (PAC) 组成.
- 采用双钻4D设计方法 (发现,定义,设计,交付),整合了患者参与原则.
- 进行了一次半结构化的汇报会议,以收集有关HCD过程的反.
主要成果:
- 三种患者参与工具 (信息图,视频,网站) 在12个月内共同开发,以教育住院患者关于血液检查.
- 工作组成员重视包容性环境,HCD丰富性和患者参与支持.
- 挑战包括由于达成共识的困难和主题冗余而导致的时间表延迟.
结论:
- 人为中心的设计 (HCD) 原则可以成功地与患者参与相结合,与PRP共同构建医疗保健工具.
- 未来的研究应该专注于为HCD共同构建策略提供证据,强调明确的项目映射,时间表和透明的共识建设.
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