关于AWESCORE测试的土耳其版本的有效性和可靠性
Burak Yıldız1, Özge Keniş-Coşkun1, Tuğçe Kızıltepe1
1Department of Physical Medicine and Rehabilitation, Marmara University Medical Faculty, İstanbul, Türkiye.
Turkish archives of pediatrics
|March 17, 2025
概括
土耳其阿尔弗雷德健康评分 (AWESCORE) 是衡量囊性纤维化 (CF) 患者生活质量的有效和可靠工具. 这种简单的评估有助于为儿童和成人CF群体做出临床决策.
科学领域:
- 医学研究 医学研究
- 健康科学 卫生科学 卫生科学
- 临床评估 临床评估
背景情况:
- 患者报告的生活质量 (QoL) 对囊性纤维化 (CF) 护理的临床决策至关重要.
- 目前的标准,囊性纤维化问卷修订 (CFQ-R),有特定年龄的版本,需要计算机评估.
- 对于儿科和成人CF患者,需要一个更简单的QoL评估工具.
研究的目的:
- 确定阿尔弗雷德健康评分 (AWESCORE) 的土耳其版本的有效性和可靠性,用于评估CF患者的QoL.
- 为土耳其CF人口提供更容易使用的QoL测量工具.
主要方法:
- 方法研究涉及翻译AWESCORE到土耳其语.
- 对99名CF患者 (≥10岁) 应用了10个问题AWESCORE (每个问题的0-10,0-100总分) 的应用.
- 通过比较稳定与恶化状态以及AWESCORE与CFQ-R.R.的比较来评估24小时的测试-重试可靠性和有效性.
主要成果:
- 在所有问题上,测试重复测试的可靠性很好,类内相关系数 (ICC) 值在0.9以上.
- 在稳定患者 (79.35 ± 6.51) 与肺恶化患者 (41.93 ± 8.58) (P < .001) 中显著更高的QOL得分.
- 所有问题都显示出出色的有效性,在恶化期间显示明显更差的QOL (P < .001).
结论:
- 土耳其版本的AWESCORE是评估CF患者的QoL的有效和可靠的工具.
- AWESCORE提供了一种简单有效的方法来评估土耳其CF患者的QOL.
- 这个工具可以通过提供可靠的QoL数据来支持临床决策.
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