走向功能性滴答诊断的旅程和诊断后支持的经验:青少年及其父母的观点

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Olivia Burn¹, Morvwen Duncan², Eve McAllister²

¹Research Department of Clinical, Educational and Health Psychology, University College London, UK.

Disability and rehabilitation

|March 17, 2025

概括

功能性滴答 (FTs) 的青少年及其家人经常感到不信任,并努力寻找足够的支持. 更好的理解和量身定制的策略对于管理FT和减少耻辱感至关重要.

科学领域:

精神病学是一个精神病学.
儿科儿科儿科
定性研究是指质量研究.

背景情况:

2020年观察到功能性滴滴障碍 (FTs) 的增加,与COVID-19大流行病相吻合.
功能性症状和动障碍显著影响孩子和父母的生活质量和家庭功能.
关于FT诊断对青少年及其家人的影响的了解有限.

研究的目的:

为了探索青少年和家长的经验与功能性滴答诊断.
为了调查相关的症状和功能性的诊断后支持.
了解功能性动作对年轻人和他们的家庭的影响.

主要方法:

涉及半结构面试的定性研究.
通过图雷特的行动招募了七名青少年女性 (12-18岁) 和八名父母.
采访采用反射主题分析进行分析.

主要成果:

关键主题包括青少年感到被指责,不信任和被忽视.
参与者报告说,在获得帮助和支持方面遇到了挑战.
确定了与专业/社区支持和身份/关系变化有关的主题.

结论:

强调需要对FT和整体需求进行心理教育.
强调个性化管理策略的重要性以及对额外需求的支持.
强调需要增加公众和专业人士的理解,以减少耻辱.

关键词:

功能性提克是指功能性的提克.诊断诊断诊断诊断诊断诊断功能性神经系统疾病功能性神经系统疾病心理健康心理健康神经多样性是指神经多样性.定性研究是指质量研究.这是一种TIC障碍,TIC障碍.图雷特综合征 (Tourette Syndrome) 是一个

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