应对策略问卷的评估 - - 系统性硬化症疲劳的修订:一种以患者为中心的硬化干预网络 (SPIN) 队列研究
Cassidy Dal Santo1, Meira Golberg2, Marie-Eve Carrier2
1Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, and Department of Psychiatry, McGill University, Montreal, Quebec, Canada.
Clinical and experimental rheumatology
|March 17, 2025
概括
应对策略问卷修订疲劳 (CSQ-R-Fatigue) 可能无法准确地测量系统性硬化症 (SSc) 的疲劳应对,这是由于语言和疾病偏见. 需要新的工具来评估SSc疲劳管理的积极应对策略.
科学领域:
- 类风湿病学 类风湿病学
- 心理学 心理学 心理学
- 健康科学 卫生科学 卫生科学
背景情况:
- 疲劳是系统性硬化症 (SSc) 患者面临的重大挑战.
- 现有的应对疼痛的工具可能无法充分评估SSc患者的疲劳应对策略.
- 复制的应对策略问卷 (CSQ-R) 是一种有效的应对疼痛的工具.
研究的目的:
- 调整CSQ-R以评估SSc.中的疲劳应对能力.
- 为了评估适应的CSQ-R-Fatigue仪器的心理测量特性.
- 为了确定CSQ-R-Fatigue对不同SSc群体的适用性.
主要方法:
- 适应CSQ-R项目的疲劳和SSc患者小组的验证.
- 向大量SSc参与者 (n=863) 进行CSQ-R-Fatigue的管理.
- 对因子结构进行确认因素分析 (CFA),根据语言和疾病亚型进行差异性项目功能 (DIF) 分析,并进行可靠性测试 (内部一致性,测试重试).
主要成果:
- 在适应的CSQ-R-Fatigue中复制了CSQ-R的6个因素结构.
- 对语言 (11项) 和疾病亚型 (10项) 进行了实质差异项目功能 (DIF) 鉴定.
- 对于语言和亚型的4个因子,DIF导致的因子得分差异显著;测试-重新测试可靠性在0.68到0.91.9之间.
结论:
- CSQ-R-Fatigue可能会表现出与语言和疾病严重程度相关的偏见,这可能会限制其适用于评估SSc.疲劳应对的适当性.
- 目前的CSQ-R-Fatigue主要评估心理应对,缺乏评估积极应对策略.
- 需要进一步的研究来开发或确定适当的工具来评估SSc疲劳管理中的积极应对策略.
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