脊柱裂关怀的进步:全球之旅向尊严,包容和创新
Jonathan Castillo1,2, Judy K Thibadeau3, Tim Brei3
1Developmental Medicine, Department of Pediatrics, Children's Nebraska Hospital/ University of Nebraska Medical Center, Omaha, NE, USA.
Journal of pediatric rehabilitation medicine
|March 17, 2025
概括
这个特别号强调了创新的脊柱裂 (SB) 研究,强调了全球护理范式和进步. 它呼吁继续努力为全球的SB社区提供公平的发展.
科学领域:
- 儿科康复医学 儿科康复医学
- 全球健康 全球健康
- 发育障碍 发育障碍是一种发展障碍.
背景情况:
- "儿科康复医学杂志" (Journal of Pediatric Rehabilitation Medicine,JPRM) 关于脊柱裂 (SB) 的专期近十年来一直是研究的一个重要论坛.
- "蓝色大理石健康"概念可能适用于理解高收入国家的SB护理分配,而JPRM也提供了对全球SB护理的见解.
- 最近的进展包括脊柱状带病协会 (SBA) 关于照顾脊柱状带病患者的指导方针.
研究的目的:
- 巩固在2025年脊柱双关节临床护理会议上提出的最先进的研究成果.
- 促进临床医生,研究人员和SB社区之间的对话和合作.
- 强调全球SB护理中公平和可持续发展的重要性.
主要方法:
- 汇编了在2025年脊柱双关节临床护理会议上发表的文章.
- 包括SB社区成员,家长,临床医生和研究人员的不同观点.
- 在SB护理中综合当前的知识和创新方法.
主要成果:
- 特别期刊介绍了尖端研究和关于脊柱裂的讨论.
- 它反映了日益强调全球合作和公平的护理准入.
- 强调了SB社区和各种利益相关者的参与.
结论:
- 该JPRM专题号是推动脊柱裂的研究和护理的重要资源.
- 持续承诺至关重要,以确保在全球范围内为SB患者提供公平和可持续的机会.
- 合作和开放的对话对于改善全世界的护理标准至关重要.
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