通过与为农村和少数群体家庭服务的社区组织合作,识别儿童癌症幸存者的财务毒性经验
Catherine Benedict1,2, Kelley Bloomer1, Elle Billman3
1Department of Psychiatry and Behavioral Science, Stanford University School of Medicine, Palo Alto, California, USA.
Psycho-oncology
|March 17, 2025
概括
青少年和年轻成人癌症幸存者及其父母面临着由于医疗费用和就业中断而造成的重大财务毒性. 社区伙伴关系对于支持因癌症而经历经济困难的弱势群体至关重要.
科学领域:
- 在瘤学瘤学.
- 卫生经济学 卫生经济学
- 社会学 社会学 社会学
背景情况:
- 金融毒性 (FT) 显著影响青少年/年轻成人 (AYA) 癌症幸存者和少数群体.
- 这项研究调查了AYA儿童癌症幸存者,他们的父母和支持人员在农村,西班牙裔/拉丁裔多数地区的FT经验.
研究的目的:
- 探索AYA儿童癌症幸存者及其家属所经历的多方面的财务毒性.
- 了解社区癌症支持组织为这一群体提供服务的观点.
主要方法:
- 与一个非营利组织合作进行了需求评估.
- 与英语和西班牙语的AYA幸存者,家长和组织工作人员进行了半结构化采访.
- 用应用主题分析方法分析了定性数据.
主要成果:
- 物质上的困难包括直接/间接的医疗费用,影响了父母的就业,造成了经济压力.
- 行为影响包括跳过医疗检查和适应以满足基本需求.
- 经济压力因就业中断,农村交通问题,保险挑战和缺乏安全网而加剧.
结论:
- AYA幸存者和家长在多个领域经历了持续的FT,由社会经济和结构因素加剧.
- 对FT的干预必须涉及社区组织,以有效地接触到弱势群体.
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