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自闭症儿童的家庭导航:对定量和定性证据的范围审查
Ingrid Y Lin1, Anna C Morgan2, Christopher D Stave3
1Division of Developmental-Behavioral Pediatrics, Stanford University, 3145 Porter Dr., Wing B, Palo Alto, CA, 94304, USA. ingridyl@stanford.edu.
Journal of autism and developmental disorders
|March 18, 2025
概括
家庭导航 (FN) 通过增强家庭福祉和获得护理来改善自闭症服务. 需要进行进一步的研究,以确定这种自闭症干预的最佳实践和以儿童为中心的结果.
科学领域:
- 自闭症谱系障碍研究研究
- 医疗保健服务研究 医疗服务研究
- 家庭支持 干预 干预
背景情况:
- 家庭导航 (FN) 是减少自闭症服务供应差异的关键干预措施.
- 对于自闭症儿童的FN的实施和有效性了解有限.
- 现有的文献缺乏关于这个人群的FN模型和结果的全面数据.
研究的目的:
- 对自闭症儿童的家庭导航文学进行范围审查.
- 总结现有的FN干预措施的特点,模型和结果.
- 识别知识差距,并建议未来的研究方向为自闭症NF.
主要方法:
- 使用Arksey和O'Malley的框架进行了范围审查.
- 在五个主要数据库 (PubMed,CINAHL,Embase,社会服务摘要,Web of Science) 的搜索中,发现了308篇论文.
- 十七个出版物符合纳入标准,通过内容分析和描述性摘要提取和合成数据.
主要成果:
- 七项研究评估了FN模型,报告了对家庭激活,福祉,知识和服务获取的积极影响.
- 三项研究专注于FN工具,而七项定性/混合方法研究为程序改进提供了洞察力.
- 没有研究报告儿童发育状况或行为结果的改善.
结论:
- 家庭导航是改善家庭结果和自闭症护理服务利用的有希望的干预措施.
- 进一步的研究对于定义最佳实践,建立以儿童和家庭为中心的指标,并确保可扩展性和可持续性至关重要.
- 目前的证据凸显了FN在解决自闭症服务供应方面的不平等问题方面的潜力.
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