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为重症患者的替代决策者制定疾病感知问卷的开发和初步测试:一种混合方法研究
Louise Mui1, Brenda Morgan2, Michaël Chassé3
1Schulich School of Medicine & Dentistry, Western University, London, ON, Canada.
概括
开发了一个新的问卷,即替代决策者疾病感知问卷 (IPQ-SDM),以评估替代决策者如何看待重症患者的疾病. IPQ-SDM显示与重症监护室 (ICU) 环境中的临床测量有适度的相关性.
科学领域:
- 关键护理医学 关键护理医学
- 心理测量 心理测量 心理测量
- 患者体验 患者体验
背景情况:
- 替代决策者 (SDM) 为失能患者做出关键决策.
- 评估SDM对患者疾病的看法在重症监护中具有挑战性.
- 现有的工具,如简要疾病感知问卷 (简要-IPQ) 并没有为SDM量身定制.
研究的目的:
- 开发和测试替代决策者疾病感知问卷 (IPQ-SDM).
- 调整简要的IPQ以供重症患者的SDM使用.
- 评估IPQ-SDM与重症监护室 (ICU) 中临床数据的相关性.
主要方法:
- 采用混合方法研究,结合定性反来修改简要IPQ.
- 适应问卷 (IPQ-SDM) 已在入院后的三天内给了ICU患者的SDM.
- 使用了前性观察设计,从患者病历中收集数据进行相关性分析.
主要成果:
- 88%的SDM完成了IPQ-SDM,平均总得分为43分 (SD 11).
- IPQ-SDM总得分与护理人力得分 (NEMS) 的九个等价值 (r=0.42,P=0.005) 略有相关.
- 与活着出院的患者相比,在医院死亡的患者观察到更高的IPQ-SDM得分 (P=0.03).
结论:
- IPQ-SDM显示了与成人ICU中的临床措施的温和相关性.
- 在广泛实施之前,需要进一步的研究来验证和完善IPQ-SDM.
- 该工具可能会为重症监护机构的SDM视角提供见解.
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