在术后复发后,肝细胞癌患者及其配偶的应对经验:二次性定性研究
Xian Yue1,2, Yanhui Wang2, Ruishuang Zheng2
1Department of Nursing, The Fourth Hospital of Hebei Medical University, Shijiazhuang, China.
Asia-Pacific journal of oncology nursing
|March 19, 2025
概括
这项研究探讨了夫妇如何应对中国肝细胞癌 (HCC) 复发的情况. 研究结果强调了配偶积极应对,患者被动,以及对面对癌症复发的家庭进行系统支持的关键需求.
科学领域:
- 在瘤学瘤学.
- 心理社会瘤学
- 质量健康研究 质量健康研究
背景情况:
- 双向性应对受文化,社会经济和疾病进展因素的影响.
- 在中国文化中,癌症复发通常被视为终端事件,影响家庭动态.
- 以家庭为中心的护理是优先考虑的,需要了解基于夫妇的应对机制.
研究的目的:
- 为了探索肝细胞癌 (HCC) 患者及其配偶复发后的二次性应对经验.
- 在中国文化背景下调查应对,在中国文化背景下,复发被视为死刑.
- 为管理癌症复发的夫妇提供文化敏感干预信息.
主要方法:
- 描述性的定性研究设计,使用深入的,半结构化的访谈.
- 13对夫妇 (HCC患者和配偶) 在第三级癌症医院参加了这项研究.
- 采访以Actor-Partner Interdependence Model (APIM) 框架为指导;数据通过遵循COREQ指导方针的专题分析进行分析.
主要成果:
- 出现了三个主题:积极应对,负面应对倾向,以及需要系统支持.
- 情侣们经常将HCC复发视为死刑,导致配偶采取主动策略 (例如,寻求治疗,隐信息).
- 患者,特别是那些有遗传背景的患者,表现出被动性和退出治疗;配偶感到压倒,需要专业指导,经济支持和同行网络.
结论:
- 对于复发性HCC患者及其配偶来说,认识到相互依赖的应对是至关重要的.
- 建议采取文化敏感的双向干预措施,以促进协作应对和管理死亡焦虑.
- 通过知识和支持赋予夫妇权力,提高了他们对管理复发的信心.
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