在局部复发性直肠癌的长期幸存者中生存问题:一种定性研究
Niamh McKigney1, Sophia Waldenstedt2,3, Elisabeth Gonzalez2
1Clinical Trials Research Unit, Leeds Institute of Clinical Trials Research, University of Leeds, Leeds, UK.
概括
局部复发性直肠癌 (LRRC) 的长期幸存者面临着各种生存挑战,包括身体,心理和社会影响. 解决后续护理的未满足需求,特别是性功能,对于改善生活质量至关重要.
科学领域:
- 在瘤学瘤学.
- 癌症生存率研究 癌症生存率研究
- 质量健康研究 质量健康研究
背景情况:
- 在治疗治疗后,越来越多的患者在局部复发性直肠癌 (LRRC) 中幸存下来.
- 这些患者的长期经历和生存问题在现有文献中未得到充分报道.
研究的目的:
- 为了识别和理解那些经过LRRC治疗的人所面临的长期生存问题.
- 提供对LRRC幸存者的生活经验的见解,以告知未来的护理策略.
主要方法:
- 国际多中心定性研究,涉及LRRC治疗后超过3年没有疾病的成年人.
- 通过各种平台 (面对面,电话,微软团队) 进行的半结构面试.
- 使用框架方法进行主题分析,以确定关键的生存主题.
主要成果:
- 来自7个国家的11个地点的26名参与者接受了采访,治疗后的中位数随访时间为5年.
- 八个主要主题出现了:长期随访护理,未满足的需求,身体影响,口腔/尿道器件管理,心理影响,性功能,日常生活影响和未来的适应.
- 大多数参与者报告说,尽管经历了各种各样的问题,但他们适应得很好.
结论:
- LRRC的生存是复杂的,涉及多方面的身体,心理和社会挑战.
- 虽然幸存者表现出性,但仍有大量未满足的需求,特别是关于性功能支持的需求.
- 对于LRRC幸存者来说,进一步的研究和定制的幸存者护理计划是必不可少的.
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