在儿科瘤学中,兄弟姐妹在医院和家庭之间过渡的实践经验:一种定性研究
Josefine Tang Rørbech1, Kamilla Tofting-Olesen1, Karin Enskär2
1Department of Paediatrics and Adolescent Medicine, Unit for Research and Development in Nursing for Children and Young People, Aarhus University Hospital, Aarhus N, Denmark.
概括
患有癌症儿童的兄弟姐妹在从医院到家庭的过渡期间经常感到边缘化和不确定. 在这些干扰期间解决他们的需求对于他们在整个孩子的调整至关重要.
科学领域:
- 儿科瘤学 儿科瘤学
- 家庭心理学 家庭心理学
- 儿童癌症幸存率 儿童癌症幸存率
背景情况:
- 儿童癌症显著影响家庭动态.
- 医院和家庭环境之间的过渡给家庭带来了独特的挑战.
- 患有癌症儿童的兄弟姐妹经历了深刻的情感和社会变化.
研究的目的:
- 探索癌症儿童兄弟姐妹在儿科瘤中心和家庭之间过渡期间的经历.
- 了解这些转变如何影响兄弟姐妹的自我意识和家庭地位.
主要方法:
- 使用了现象学-解释学方法.
- 与八个兄弟姐妹进行的半结构面试和照片诱导.
- 分析以保罗·里科尔的解释理论为指导.
主要成果:
- 兄弟姐妹描述了他们如何应对边缘家庭的地位.
- 潜在的家庭分离和不确定性的话题出现了.
- 适应因疾病而改变的兄弟姐妹关系是一个重要的发现.
- 兄弟姐妹在过渡期间经历了更大的不确定性,恐惧和孤独感.
结论:
- 兄弟姐妹经常觉得距离和边缘,尽管努力接近.
- 经常发生的家庭混乱需要在过渡期间优先考虑兄弟姐妹的需求.
- 适当的支持对于兄弟姐妹在孩子的癌症旅程中进行调整至关重要.
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