多发性硬化症:多发性硬化症患者及其护理人员的质量参与经验在双重体力活动干预中
Afolasade Fakolade1,2, Miles Lambert1, Mariah Keeling3
1From the School of Rehabilitation Therapy, Queen's University, Kingston, ON, Canada.
International journal of MS care
|March 21, 2025
概括
这项研究探讨了多发性硬化症 (MS) 患者及其护理人员在体育活动 (PA) 中的质量参与 (QP). 结果为未来的二性PA干预提供信息,以加强MS二的参与.
科学领域:
- 康复科学 康复科学 康复科学
- 关于残疾人的研究.
- 运动科学 运动科学
背景情况:
- 定期的体力活动 (PA) 对患有多发性硬化症 (MS) 的个体有好处,但参与仍然是MS双的挑战.
- 实现充分的PA参与需要解决参与的数量和质量问题.
- 了解MS的二次干预中的质量参与 (QP) 经验是有限的.
研究的目的:
- 探索多发性硬化症 (MS) 两位患者的质量参与 (QP) 经验,在一个为期12周的基于小组的,两位患者的,行为PA干预过程中.
- 识别促进该群体中QP的因素,以告知未来的干预开发.
- 优化MS患者及其家庭护理人员的PA充分参与.
主要方法:
- 与6名参与者进行了半结构化采访,他们完成了二次干预.
- 在诱导性数据分析中使用了主题分析.
- 数据被推断地映射到质量类体育运动参与框架中.
主要成果:
- 六个主题,与质量类体育参与框架的构建块 (自主,归属,挑战,参与,掌握,意义) 一致,出现了,详细介绍了MS dyads的QP经验.
- 培养QP的关键干预特征包括双向方法,计划持续时间,财务激励,量身定制的组件,小组动态,促进者专业知识和实际应用机会.
结论:
- 该研究为MS患者及其护理人员设计有效的双向PA计划提供了对QP考虑的关键见解.
- 结果可以指导开发的干预措施,增强充分的PA参与,无论是MS患者和他们的支持网络.
- 在二代性PA干预中优化QP对于改善MS二代的整体参与至关重要.
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