"只要你学会适应" - 一项纵向混合方法研究,探讨了风湿性关节炎的第一个十年
Maria Bergström1, Åsa Larsson Ranada2, Annette Sverker3
1Department of Health, Medicine and Caring Sciences, Linköping University, Norrköping, Sweden. maria.bergstrom@liu.se.
BMC rheumatology
|March 25, 2025
概括
患有类风湿性关节炎 (RA) 的男性和女性在诊断后十年经历了持续的残疾. 患者报告的经验往往与客观测量有所不同,这凸显了需要个性化康复来增强日常生活参与的必要性.
科学领域:
- 类风湿病学 类风湿病学
- 患者报告的结果
- 混合方法研究研究混合方法研究.
背景情况:
- 风湿性关节炎 (RA) 显著影响日常生活,尽管早期诊断和现代治疗.
- 诊断后多年的持续症状需要了解长期患者的经验.
- 当代的RA治疗需要评估主观感知与客观疾病标志物的对比.
研究的目的:
- 综合男性和女性在诊断后的第一个十年中与当代治疗RA的经历.
- 将患者的主观感知与残疾和疾病活动的定量测量进行比较.
- 探索定性和定量数据之间的差异和趋同,以了解RA的影响.
主要方法:
- 采用了纵向收的混合方法设计.
- 31名RA患者被跟踪了10年,收集了关于疾病活动 (DAS28),握力,疼痛 (VAS) 和活动限制 (HAQ) 的数据.
- 诊断后3年和10年进行了个人访谈;使用描述性统计和线性混合模型分析了定量数据,而访谈则进行了指导内容分析.
主要成果:
- 观察到主观经验和客观指标之间的差异,有明显的性别差异.
- 妇女报告的疾病活动和握力问题比定量数据表明的更多,尽管疾病活动减少,但遇到困难.
- 虽然男性和女性在活动限制方面显示出一致的结果,但一些基本需求在定量数据中比采访中更明显.
结论:
- 个人与RA继续经历残疾十年后的诊断,无论当代治疗.
- 患者报告的结果和定量措施并不总是一致,这强调了定性数据的价值.
- 以人为中心的康复对于优化患者参与日常生活至关重要,整合主观和客观发现.
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