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英国纵向链接协作 (UK LLC):国家信任的纵向研究研究环境

Andy Boyd¹, Katharine M Evans¹, Emma L Turner¹

¹UK Longitudinal Linkage Collaboration, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, BS8 2PS, UK.

International journal of population data science

|March 25, 2025

概括

英国纵向链接协作 (UK LLC) 为英国纵向人口研究 (LPS) 提供了一个安全的可信的研究环境 (TRE). 它将各种行政和健康数据联系起来,使公共利益的综合研究成为可能.

科学领域:

医疗信息学医疗信息学
人口健康人口健康
数据科学数据科学数据科学

背景情况:

英国纵向链接协作 (UK LLC) 是英国纵向研究社区的国家可信研究环境 (TRE).
它支持英国广泛的纵向人口研究 (LPS) 集合,最初是为了COVID-19研究而建立的,但现在是公共利益研究的多功能资源.

研究的目的:

为纵向研究提供安全的分析环境,可信的链接处理和强大的治理框架.
为了促进纵向人口研究 (LPS) 数据与各种行政和健康记录的联系.
通过积极的公众参与和遵守严格的数据保护标准,确保参与者的机密性和公众信任.

主要方法:

建立了一个安全的TRE,获得ISO 27001认证和英国统计局的认证.
实施了一个可信的第三方链接处理器和一个全面的治理框架.
参与了一项公众参与计划,以确保可接受性和伦理数据处理.

主要成果:

22个LPS已经加入英国LLC,与英格兰国家卫生服务 (NHS),威尔士国家卫生服务局,苏格兰国家卫生服务局,劳工和养老金部以及英国皇家税务局和海关记录保持联系.
UK LLC Explore为研究人员提供了一个发现可用数据的平台,所有应用程序都记录在一个公共的数据访问注册表上.
通过TRE,可以对集成的LPS参与者数据进行查询,并系统地与各种记录联系起来.

结论:

英国LLC成功地使研究人员能够访问和分析链接的纵向数据,用于公共利益研究.
该平台正在扩大其数据范围,并积极寻求额外的LPS合作伙伴关系,以支持更广泛的研究社区.
英国LLC的定位是吸引越来越多的研究人员跨越各种学科,政府和行业.

关键词:

这是公平的,公平的.英国有限责任公司 (UK LLC)队列研究是指队列研究.纵向人口研究是指纵向人口研究.记录链接记录链接值得信赖的研究环境

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