社区参与方法和经验教训:肯尼亚PRECISE怀孕队列研究的案例研究
Onesmus Wanje1, Angela Koech1,2, Mai-Lei Woo Kinshella3
1Centre of Excellence for Women and Child Health, Aga Khan University, Nairobi, Kenya.
Frontiers in public health
|March 26, 2025
概括
社区 (CE) 在PRECISE研究中的参与改善了对研究伦理的理解,并建立了信任. 这种方法促进了相互学习,并加强了社区与研究人员的关系,以更好地参与健康研究.
科学领域:
- 全球健康 全球健康
- 医学伦理 医学伦理
- 公共卫生研究 公共卫生研究
背景情况:
- 社区参与 (CE) 对伦理健康研究至关重要,增强知情同意和知识交流.
- 肯尼亚的PRECISE研究旨在调查孕妇的胎盘疾病,需要强有力的社区参与.
研究的目的:
- 详细介绍了PRECISE前性怀孕队列研究的社区参与策略的开发和实施.
- 促进对研究原则和知情同意的理解,并在研究人员和社区之间建立反循环.
主要方法:
- 参与了各种各样的利益相关者:卫生工作者,管理人员,领导者和社区成员 (女性和男性).
- 采用各种不同的CE方法和工具,适应当地环境.
- 最初的重点是告知社区并获得接受,演变为相互学习.
主要成果:
- 实现了对知情同意和研究原则的广泛理解.
- 解决并澄清了有关生物样本采集的误解和担忧.
- 加强社区与研究人员的关系,以增加参与和参与为证.
结论:
- 建议将社区成员纳入CE团队,以实现有效的参与.
- 在整个研究过程中,持续和适应性CE对于成功至关重要.
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