幸存者驱动的PROM开发用于常规结直肠癌护理
Johanne D Lyhne1, Lise Gade2, Laila Hansen2
1Department of Oncology, University Hospital of Southern Denmark - Vejle, Denmark; Institute of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, Odense, Syddanmark, Denmark. johanne.dam.lyhne@rsyd.dk.
Acta oncologica (Stockholm, Sweden)
|March 28, 2025
概括
这项研究开发了一种患者报告结果测量 (PROM) 方法,涉及癌症幸存者,以克服实施障碍. 新的PROM增强了关于幸存者护理需求的沟通.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者报告的结果
背景情况:
- 患者报告的结果措施 (PROM) 对于评估幸存者护理需求至关重要,但面临实施挑战.
- 在PROM实施中的有限成功阻碍了有效的患者护理和支持.
- 为了开发有效和可实施的PROM,最终用户的参与至关重要.
研究的目的:
- 通过积极参与最终用户,提高PROMs的实施成功率.
- 制定一个PROM,解决癌症幸存者护理中的具体实施障碍.
- 创建一个工具,促进癌症幸存者和临床医生之间更好的沟通.
主要方法:
- 确定实施障碍:问题相关性不足,患者与临床医生的互动受阻,不适合所有患者.
- 与结直肠癌 (CRC) 幸存者和非正式照顾者 (IC) 举行研讨会,讨论障碍.
- 利用卢文的定性分析指南 (QUAGOL) 来分析研讨会数据并确定相关的幸存者问题.
主要成果:
- 来自4,545名CRC幸存者的数据为识别相关问题提供了信息.
- 与13名与会者参加的研讨会定义了关键构造:福祉,晚期影响 (心理/身体),照顾者的角色,身份,支持,经济,康复和信息.
- 开发了一个由34项组成的PROM,其中包含了促进患者与临床医生的互动的元素,适用于所有幸存阶段.
结论:
- 开发的PROM通过纳入幸存者识别的需求来解决关键的实施障碍.
- 它提供了从幸存者到临床医生对晚期影响和支持性护理需求的直接反.
- 这种对话工具旨在提高幸存者护理的有效性.
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