为青年和家庭在研究中的具体参与制定框架:建议进行范围审查和定性描述性研究
Sarah E P Munce1,2,3,4, Clementine Jarrett5,6,7, Vjura Senthilnathan1,2,8
1Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.
JMIR research protocols
|March 28, 2025
概括
本研究探讨了青少年健康研究中的患者参与模式,识别差距并了解青年/家庭的观点,以开发一个有意义参与的专业框架.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和家庭的参与.
- 青年健康研究 青年健康研究
背景情况:
- 青年和家庭在健康研究中至关重要,但面临着象征主义和权力不平衡等挑战.
- 现有的患者参与模式在针对青少年的研究中适用性有限.
- 需要量身定制的方法来确保有意义的青年和家庭参与.
研究的目的:
- 评估青年研究中患者参与模式的文献.
- 了解青年和家庭对有意义的参与组件的看法.
- 为制定一个针对青年和家庭的具体参与框架提供信息.
主要方法:
- 一个综合的知识翻译方法,结合范围审查和定性描述性研究.
- 从2013年到2024年对数据库 (Medline,CINAHL,EMBASE,PsycINFO,Cochrane) 的范围审查.
- 与9-17年轻人和9-17岁的家庭成员进行半结构化采访,以诱导方式分析.
主要成果:
- 已经成立了一个由9名成员组成的综合知识翻译小组,其中包括6名青年和3名家庭成员.
- 资金来自加拿大卫生研究院.
- 该研究正在进行中,计划收集和分析数据.
结论:
- 结果将照亮当前关于青少年研究患者参与模式的知识.
- 该研究将确定青年和家庭重视的参与的关键组成部分.
- 结果将指导UNITE框架的创建,并为以青年为中心的研究制定一个有效的措施.
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