青年患者和公众参与荷兰的健康研究:来自多方利益相关者访谈研究的经验
Femke Hilverda1, Kaat Tielens2, Violet Petit-Steeghs3
1Department of Socio-Medical Sciences, Erasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, The Netherlands. hilverda@eshpm.eur.nl.
Research involvement and engagement
|March 29, 2025
概括
让儿童和青少年参与资助的健康研究需要有反应的方法. 灵活的结构和充足的资源对于成功的青少年患者和公众参与至关重要.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与.
背景情况:
- 限制儿童和青少年参与资助的健康研究.
- 在研究中,年轻人往往是一个难以接触和脆弱的群体.
- 有效的青年参与需要采取响应式的方法.
研究的目的:
- 评估青年参与资助的健康研究的经验.
- 获取关于在青年健康研究中延续响应式方法的见解.
- 从多个利益相关方的角度评估青年参与.
主要方法:
- 评估了六个卫生研究补贴计划中的八个项目.
- 使用RE-AIM模型进行多层次干预评估.
- 与项目经理,委员会成员,研究人员和青年参与者进行了24次深入采访.
主要成果:
- 采用了响应式参与方法 (多元化,间接,个人).
- 不灵活的研究结构和有限的时间阻碍了适应年轻人的需求.
- 阻碍了具有移民背景或残疾的年轻人的参与.
结论:
- 补贴提供者必须为响应性青年参与分配资源.
- 创造响应空间是成功青年患者和公众参与的关键.
- 解决结构性障碍对于公平的年轻人参与健康研究至关重要.
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