家长愿意支持未来的研究:关于参与新生儿研究的跨部门研究
Christine Arnold1, Dina Hediger2, Julian Eychmüller1
1Division of Neonatology, Department of Paediatrics, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.
Acta paediatrica (Oslo, Norway : 1992)
|March 31, 2025
概括
早产婴儿的父母希望参与新生儿研究,优先考虑婴儿的神经发育和父母的支持. 他们愿意参与并为质量改进提供有价值的见解.
科学领域:
- 新生儿护理 新生儿护理
- 临床研究临床研究
- 患者和公众参与.
背景情况:
- 父母参与新生儿研究对于质量改善至关重要.
- 了解父母的观点可以增强研究设计和参与.
研究的目的:
- 探索父母对参与新生儿研究的看法.
- 确定研究领域和任务的家长优先事项.
- 评估家长的参与意愿以及他们对补偿的需求.
主要方法:
- 对德语母语母语的早产婴儿的横截面观察研究.
- 使用了自己开发的9个问题问卷.
- 对答案的描述性数据分析.
主要成果:
- 187名家长参与了这项研究,主要研究重点包括婴儿神经发育,家长支持和心理健康.
- 父母经常建议提供对学习材料的反,并协助数据收集.
- 很大一部分人表示愿意参加会议,并优先补偿旅行和停车费用.
结论:
- 参与临床试验的家长是患者和公众参与新生儿研究的宝贵合作伙伴.
- 父母愿意参与并有具体的想法,特别是在婴儿神经发育方面.
- 他们的贡献可以大大提高新生儿研究的质量和相关性.
相关概念视频
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