新生儿重症监护室的声音:理解新生儿重症监护室研究的家长观点
medRxiv : the preprint server for health sciences
|March 31, 2025
概括
利他主义激励新生儿重症监护室 (NICU) 的父母将婴儿纳入研究. 改善招聘需要有同情心的沟通,并应对风险和利益,以提高参与度.
科学领域:
- 新生儿研究新生儿研究
- 临床试验招聘工作人员
- 父母的参与是父母的参与.
背景情况:
- 新生儿重症监护病房 (NICU) 面临着低于最佳的研究招聘率的挑战.
- 了解父母的动机对于改善新生儿研究的招生至关重要.
研究的目的:
- 确定影响家长决定将新生儿纳入NICU研究的关键因素.
- 收集关于加强家长参与新生儿临床试验的建议.
主要方法:
- 与NICU患者的24名家长进行了半结构化采访.
- 基于理论的方法被用于数据分析,允许主题有机地出现.
- 与UCSF医院的先前研究参与者进行了虚拟采访.
主要成果:
- 出现了三个主要主题:家长的弹性和支持系统,决策因素 (预后,情绪,风险/益处) 和招聘建议.
- 父母认为利他主义,帮助未来家庭的愿望,以及对研究人员的信任是关键的动机.
- 建议包括及时,有同情心的沟通,对情绪状态的敏感性以及对研究目标的明确解释.
结论:
- 利他主义是NICU家长参与研究的重要动机.
- 有效的招聘策略必须优先考虑来自可信来源的同情,及时的沟通.
- 对NICU环境的敏感性和风险和利他主义结果的明确阐述对于改善参与是必不可少的.
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