在一个圆洞里装一个方形钉子吗? 一个混合方法研究研究伦理学和协作健康和社会护理研究,涉及"弱势群体"
Chiara De Poli1, Jan Oyebode2, Mara Airoldi3
1Care Policy and Evaluation Centre, London School of Economics and Political Science, Houghton Street, London, WC2A 2AE, United Kingdom. c.de-poli@lse.ac.uk.
Health research policy and systems
|April 1, 2025
概括
目前的研究伦理框架需要改进,以促进协作健康和社会护理研究. 建议侧重于支持合作,允许灵活性,并加强弱势群体的持续道德实践.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 社会护理研究 伦理学 社会护理研究
- 协作研究方法 协作研究方法
背景情况:
- 目前的研究伦理框架植根于生物医学研究,对协作健康和社会护理研究提出了挑战.
- 现有的框架在解决合作研究的复杂性方面存在局限性,特别是与弱势群体的合作研究.
研究的目的:
- 调查研究伦理体系如何处理涉及弱势群体的合作研究.
- 确定实用建议,以使研究伦理原则与协作研究实践保持一致.
主要方法:
- 一个双轮的在线Delphi研究,35名学术研究人员经历了与弱势群体的合作研究.
- 一个重点小组由八名德尔菲小组成员组成,以改进建议.
主要成果:
- 在32个关于研究伦理体系潜在改进的陈述上达成共识.
- 产生了12个实际建议,分组为支持合作,允许灵活性和加强关系伦理.
结论:
- 这项研究提供了实证证据,证明了研究伦理体系对涉及弱势群体的协作研究的参与.
- 建议建议加强协作维度的伦理审查,增加灵活性,并转向持续的,关系式的伦理实践.
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