慢性自发性疹的患者报告结果措施:以优化患者管理为中心的战略
Eustachio Nettis1, Oliviero Rossi2, Laura Diluvio3
1Department of Precision and Regenerative Medicine and Ionian Area, Section of Allergology and Clinical Immunology, University of Bari-Aldo Moro, Bari, Italy - Aldo Moro, Bari, Italy.
Clinical and experimental dermatology
|April 2, 2025
概括
由于未知的触发因素,慢性自发性疹病 (CSU) 的管理具有挑战性. 本综述涵盖了患者报告的结果措施 (PROM) 和移动健康应用程序,以更好地监测和个性化护理.
科学领域:
- 皮肤病学 皮肤病学
- 临床研究 临床研究
- 医疗信息学 医疗信息学
背景情况:
- 慢性自发性疹 (CSU) 呈现为持续的和/或血管,严重影响患者的生活质量.
- 缺乏可识别的触发因素使得CSU的诊断,监测和有效管理变得复杂.
- 患者报告结果 (PROs) 提供了对患者健康的关键见解,促进了个性化护理和明智的临床决策.
研究的目的:
- 审查使用在慢性自发性疹 (CSU) 管理中的十二个患者报告的结果指标 (PROM).
- 探索移动健康 (mHealth) 技术的应用,以实时监测CSU患者的疾病.
- 找出现代化解决方案,以加强CSU管理和患者护理.
主要方法:
- 对CSU的PROM进行系统文献综述.
- 分析现有关于mHealth在慢性疾病管理中的应用研究.
- 探索 CSU 监测和处理当前的挑战.
主要成果:
- 确定并总结了十二个不同的PROM来评估CSU活动,症状控制和生活质量.
- 强调了mHealth应用程序的潜力,为改善疾病跟踪提供实时,患者生成的数据.
- 强调PROMs和mHealth在解决当前CSU管理局限性的作用.
结论:
- 患者报告的结果指标 (PROM) 是全面的CSU评估和个性化治疗策略的重要工具.
- 移动健康 (mHealth) 应用程序为实时监测和加强患者参与CSU护理提供了一个有希望的途径.
- 整合PROM和mHealth可以显著改善慢性自发性疹的管理,从而改善患者的治疗结果.
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