晚期癌症患者自主偏好指数的中文版本:基于认知面试的文化适应研究
Chao Yan1,2, Yonghong Li3, Ji Ai4
1Nursing Department, Guizhou Aerospace Hospital, Guizhou Zunyi, 563000, China. muyanchao0520@163.com.
BMC psychology
|April 2, 2025
概括
这项研究使用认知面试改进了中国自治偏好指数 (API),创造了一个可靠的工具来评估中国晚期癌症患者的自治偏好.
科学领域:
- 在瘤学瘤学.
- 医学社会学 医学社会学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 全球癌症负担需要以患者为中心的护理,强调自治和偏好.
- 在中国,对于测量晚期癌症患者自主偏好的验证工具,存在很大的差距.
- 优化和验证评估工具对于提高医疗保健质量至关重要.
研究的目的:
- 评估中国自治偏好指数 (API) 项目的语义清晰度和患者理解程度.
- 验证认知面试在调整API尺度以适应中国文化背景方面的有效性.
- 开发一个文化上相关的,心理测量上健全的仪器来评估患者的自主性.
主要方法:
- 在中国Zunyi的17名晚期癌症患者的便利抽样 (2023年3月至4月).
- 使用认知面试来评估患者对每个API项目的理解.
- 基于采访反和专家审查,进行了规模项目的代修订.
主要成果:
- 最初的采访发现了翻译API的5个项目中的语义模两可.
- 对模两可的项目进行了修订,最终得到了一个精细的23项,二维的中文API.
- 第二轮采访证实了参与者对所有修订项目的清晰理解.
结论:
- 认知面试有效地识别和解决项目模糊性,减少测量误差.
- 修订后的中国API显示了更好的准确性,可靠性和适用性.
- 经过验证的中国API作为一种有效的临床工具,用于评估晚期癌症患者的自主偏好.
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