青少年和年轻成年人之间的决策稳定性,他们对学习基因组研究结果做出选择
Amy A Blumling1, Holly Elder1, Jessica A Sinclair2
1Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.
Journal of genetic counseling
|April 3, 2025
概括
年轻人关于学习基因检测结果的决定往往是稳定的,特别是当他们后来可以改变主意时. 诸如好奇心和父母的影响等因素会影响这些选择.
科学领域:
- 基因组医学是基因组医学.
- 生物伦理学生物伦理学
- 青少年健康 青少年健康
背景情况:
- 基因组测试越来越多地可供未成年人使用,这引发了有关决策过程的问题.
- 了解影响决策稳定的因素对于学习青少年和年轻成年人的遗传测试结果至关重要.
研究的目的:
- 检查青少年和年轻成年人学习遗传检测结果的决策稳定性.
- 确定影响这些决策稳定性和不稳定性的因素.
主要方法:
- 在临床试验中,一项涉及青少年 (13-17岁) 和年轻成年人 (18-21岁) 的解释性描述研究.
- 参与者决定是否了解所有,一些或没有遗传测试结果,并有修改决定的选择.
- 采访探讨了决策偏好,信心和影响因素.
主要成果:
- 22名参与者选择学习所有 (7),一些 (7),或没有 (8) 的结果.
- 动机包括好奇心 (学习所有),以及对生活质量和生殖责任的担忧 (学习一些/没有).
- 决策稳定性随着时间的推移而增加,受父母,信心和错过的恐惧的影响;参与者重视改变决策的选择.
结论:
- 青少年和年轻成人遗传研究参与者表现出高度的决策稳定性和对学习遗传信息的选择的信心.
- 提供重新考虑决定的机会可以增强稳定性和满意度.
- 研究人员和临床医生应该考虑实施多个检查点来支持决策.
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