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在面向患者的在线乳腺癌症状可视化工具上,临床医生和患者的观点
Gillian Gresham1, Michael Luu1, N Lynn Henry2
1Department of Computational Biomedicine, Cedars-Sinai Medical Center, Los Angeles, CA.
JCO clinical cancer informatics
|April 4, 2025
概括
患者和临床医生发现乳腺癌症状探索器工具对于可视化内分泌治疗的副作用非常有价值. 建议包括改善可访问性和健康素养支持,以在未来用于临床决策.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者教育 患者教育
背景情况:
- 对激素敏感乳腺癌的内分泌治疗会导致影响生活质量和治疗坚持的副作用.
- 开发了一个在线交互工具,可视化乳腺癌症状及其轨迹.
研究的目的:
- 收集临床医生和患者在线工具上的反,旨在用于乳腺癌症状可视化.
- 根据利益相关者的意见,完善乳腺癌症状探索器工具.
主要方法:
- 虚拟焦点小组与瘤临床医生和接受他莫西芬或芳酶抑制剂治疗的乳腺癌患者进行.
- 讨论使用了一个安全的网络会议平台上的半结构面试指南.
- 焦点组的数据被录音,转录,并使用反射主题分析进行分析.
主要成果:
- 参与者 (8名临床医生,13名患者) 估计可视化症状轨迹随着时间的推移.
- 该工具最好在治疗开始前在家中使用,结合图形和文本表示是最有效的.
- 障碍包括可访问性和数字素养问题;建议简化和支持健康素养.
结论:
- 临床医生和患者的意见对于完善乳腺癌症状探索器至关重要.
- 这些发现为该工具在临床决策中的未来使用和评估提供了洞察力.
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