在血管异常患者及其护理人员中使用患者门户
Sunny C Lin1, Anna Kerr2, Christine Bereitschaft3
1Department of Medicine, Informatics Institute, Washington University School of Medicine, St. Louis, Missouri, USA.
Pediatric blood & cancer
|April 7, 2025
概括
许多患有血管异常 (VA) 的患者不使用在线患者门户,特别是那些服务不足的地区的患者. 这种未充分利用可能会加剧健康结果的差异.
科学领域:
- 医疗信息学 医疗信息学
- 医疗保健服务研究 医疗服务研究
- 患者沟通 患者沟通
背景情况:
- 患有血管异常 (VA) 的患者面临沟通挑战和未满足的信息需求.
- 在线患者门户提供了改善沟通的解决方案,但往往未得到充分利用.
研究的目的:
- 检查患者门户在被诊断患有血管异常的个体中的利用情况.
- 确定与门户网站使用相关的人口和社会经济因素.
主要方法:
- 从2020年1月到2024年1月,对电子健康记录 (EHR) 审计日志数据的回顾性分析.
- 包括来自多学科专家诊所的被诊断为VA的315名患者.
- 门户使用数据与患者人口统计和区域贫困指数的相关性.
主要成果:
- 在研究期间,51%的VA患者登录了他们的患者门户.
- 白人患者,大都市地区患者和区域贫困指数较低患者的门户访问率更高.
- 在用户中,77%的用户查看了笔记,90%的用户查看了测试结果,71%的用户发送信息给临床医生.
结论:
- 很大一部分VA患者及其护理人员不使用患者门户.
- 在门户访问方面存在不平等,来自较少城市和较贫困地区的患者使用率降低.
- 门户访问的差异可能会加剧VA患者现有的健康结果不平等.
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