在患有 kongenital ichthyosis 的儿童中欺凌
Andrea M Rustad1, Hannah Soltani1, Lynna J Yang1
1Department of Dermatology, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Pediatric dermatology
|April 7, 2025
概括
患有 ichthyosis 的儿童经历欺凌,这与不良的同龄人关系有关,并影响了家庭的生活质量. 识别和解决欺凌是全面护理的关键.
科学领域:
- 皮肤病学 皮肤病学
- 心理学 心理学 心理学
- 儿科 儿科 儿科
背景情况:
- 先天性 Ichthyosis 是一种遗传性皮肤疾病,导致可见的缩和炎症.
- 患有慢性疾病的儿童因欺凌而面临抑郁,焦虑和自杀念头的风险增加.
- 欺凌是受伊契索斯影响的家庭的一个重要问题,但仍未得到充分研究.
研究的目的:
- 调查欺凌的流行和影响,以儿童和他们的照顾者 ichthyosis.
- 探索欺凌经历,心理社会功能和家庭生活质量之间的相关性.
主要方法:
- 采用经过验证的问卷调查方法,包括儿童青少年欺凌量表-9.
- 使用患者报告结果测量信息系统 (PROMIS) 工具评估儿童和照顾者的心理社会功能.
- 使用家庭皮肤病生活质量指数 (FDLQI) 评估家庭生活质量.
主要成果:
- 患有 ichthyosis 的儿童遭受欺凌的情况与不良的同龄人关系 (r = -0.63) 和中度的耻辱感 (r = 0.53) 有着强烈的相关性.
- 护理人员的抑郁和焦虑得分与他们对孩子欺凌的看法有中等的相关性 (r = 0.46和r = 0.52).
- 家庭生活质量差与疾病严重程度,照顾者的心理健康以及孩子的同龄人关系和流动性有关.
结论:
- 欺凌会对患有 Ichthyosis 的儿童及其家人产生重大影响,影响心理社会福祉和生活质量.
- 整体的治疗 ichthyosis必须包括识别和管理的欺凌经验.
- 需要进一步的研究和临床关注,以解决欺凌在这个人群中的心理社会负担.
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