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提前护理规划讨论 - 癌症病患患有晚期疾病的视角
Delinda Pendleton1, Brian L Egleston2, Carolyn Y Fang3
1Patient Experience and Strategic Clinical Initiatives, Fox Chase Cancer Center, Philadelphia, PA, USA.
Palliative & supportive care
|April 7, 2025
概括
在晚期癌症患者中,提前护理规划 (ACP) 讨论是罕见的,许多人会推迟对话,直到他们感到更生病或在家庭讨论之后. 改善提供者沟通是提高患者与ACP的体验的关键.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 卫生沟通健康沟通
背景情况:
- 提前护理规划 (ACP) 讨论对晚期癌症患者至关重要,但有证据表明它们发生的频率较低,并且比理想时间晚.
- 对于患者的体验和为什么在这个人群中亚洲和非洲国家讨论率很低的具体原因的了解有限.
研究的目的:
- 描述与预先护理规划 (ACP) 讨论有关的患者的信念和经验.
- 探索与患者参与ACP讨论相关的因素,在晚期癌症的成年人中进行讨论.
主要方法:
- 对100名被诊断患有晚期癌症的成年患者进行了横截面调查.
- 收集的数据包括对ACP的认识,对其重要性的信念,与ACP讨论的个人经验以及不参与讨论的原因.
主要成果:
- 虽然63%的参与者听说过ACP,81%的参与者认为供应商应该发起这些谈判,但只有23%的参与者表示曾经进行过ACP讨论.
- 在那些有讨论的人中,74%的人与家人交谈,48%的人与瘤学家交谈.
- 没有ACP讨论的常见原因包括希望先与家人交谈,以及认为自己不够生病的感觉.
结论:
- 患者的信念支持ACP,但存在重大障碍,无法及时进行充分的讨论.
- 需要进行干预措施,以改善关于ACP的临床医生和患者沟通,并解决患者特定障碍.
- 加强ACP讨论可以改善患者体验,并确保他们的价值观纳入护理决策.
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