了解公众对国家电子健康记录系统的信任:一项多国定性研究研究
Kimon Papadopoulos1,2, Elske Ammenwerth3, Guillaume Lame4
1Digital Society Initiative (DSI), University of Zürich, Zurich, Switzerland.
Digital health
|April 7, 2025
概括
公众对国家电子健康记录系统 (NEHR) 的信任对于医疗保健至关重要. 这项研究验证了一个框架,发现数据安全,隐私和自主性是公众对欧洲NEHR信任的关键.
科学领域:
- 医疗信息学 医疗信息学
- 卫生社会学 卫生社会学
- 公共政策 公共政策
背景情况:
- 公共信任对于国家电子健康记录系统 (NEHR) 的成功至关重要.
- 缺乏概念明确性阻碍了政策制定者将公众信任有效地纳入NEHR实施的能力.
- 了解公众对不同人群中NEHR的信任对于广泛采用至关重要.
研究的目的:
- 验证现有的公共对医疗保健系统信任的框架,特别是针对NEHRs.
- 为了更清楚地了解公众对不同国家,文化和背景的NEHR的信任.
- 为参与NEHR实施的政策制定者和利益相关者提供一个强大的框架.
主要方法:
- 在六个欧洲国家进行了24个焦点小组:奥地利,德国,法国,意大利,荷兰和瑞士.
- 来自每个国家的居民参与讨论他们对公众对NEHRs框架的信任的看法.
- 利用定性数据来验证和完善现有的信任框架.
主要成果:
- 制定了国家特定的框架,以提高公众对国家健康数据的信任,证明了基础框架的稳定性.
- 始终将数据安全,隐私和患者自主性确定为公众对NEHRs的信任至关重要.
- 强调了医疗保健参与者对NEHR实施和公众信任的重大,但变化的影响.
结论:
- 在研究的欧洲国家为NEHRs提出了经过验证的公众信任框架.
- 这些框架为利益相关者提供了对公众对NEHR实施的信任动态的全面了解.
- 这些发现为衡量和促进公众对国家电子健康记录系统的信任提供了可操作的见解.
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