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超越诊所:对5466篇文章的社交媒体网络分析揭示了肉瘤患者面临的相互联系的挑战
Daniel Schneider1, Ethan D L Brown, Jacob Gluski
1Department of Neurosurgery, Donald and Barbara Zucker Hofstra School of Medicine at Northwell, Manhasset, NY.
American journal of clinical oncology
|April 7, 2025
概括
社交媒体显示,肉瘤治疗对患者的工作和财务有重大影响. 与临床护理一起解决这些实际挑战对于改善患者的治疗结果至关重要.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者报告的结果
背景情况:
- 社交媒体平台为患者体验提供了独特的洞察力,超出了临床环境.
- 了解患者的观点对于全面的癌症护理至关重要.
研究的目的:
- 探索疾病状况,治疗和患者体验在社交媒体上的相互联系.
- 识别在线肉瘤患者社区中的关键主题和情绪.
主要方法:
- 系统地对来自7个健康分红的5466个职位进行了主题分析.
- 使用正则表达式匹配用于主题检测和VADER用于情绪分析.
- 费舍尔精确测试和曼 - 惠特尼U测试用于统计分析并发事件和情绪.
主要成果:
- 治疗讨论 (化疗,辐射) 与工作影响有关.
- 疾病进展与治疗相关,焦虑和不确定性.
- 寻求支持的行为与医疗团队的互动有关.
- 身体症状,尤其是软弱,有负面的情绪;希望有积极的情绪.
结论:
- 肉瘤患者的言论强调了治疗,财务和工作之间的关键联系.
- 需要综合干预,解决临床和实际挑战,如金融毒性.
- 改善患者护理需要解决治疗过渡和社会经济因素.
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