患有转移性癌症的西班牙裔/拉丁裔患者的患者激活和共享决策:一种定性研究
Julia Meguro1, Mariana Khawand-Azoulai2, Heidy N Medina3
1Department of Medicine, University of Miami Miller School of Medicine, Miami, Florida, USA.
Psycho-oncology
|April 8, 2025
概括
通过提供可访问的信息和资源,可以改善西班牙裔/拉丁裔癌症患者的患者激活和共享决策. 将患者纳入护理决策是提高患者参与度和结果的关键.
科学领域:
- 在瘤学瘤学.
- 健康差异 在健康上的差异
- 患者参与 患者参与
背景情况:
- 患者激活对于健康管理和改善结果至关重要,在转移性癌症的西班牙裔/拉丁裔人群中还没有得到充分的研究.
- 与非西班牙裔/拉丁裔白人相比,这些人口群体的生活质量较差,症状负担较高.
研究的目的:
- 确定影响患者激活和共享决策的障碍和促进者.
- 专注于被诊断患有转移性癌症的英语和西班牙语西班牙裔/拉丁裔个人.
主要方法:
- 进行了3个2小时的焦点小组,与22名西班牙裔/拉丁裔患者进行了重点讨论,这些患者患有转移性固体瘤.
- 利用半结构面试来探索转移性癌症,息治疗和医疗保健沟通方面的经验.
- 对面试成绩单进行二次分析,以确定障碍物和促进者.
主要成果:
- 主要障碍包括对决策感到压倒,治疗/诊断缺乏明确性,症状管理资源不足以及语言/术语方面的担忧.
- 辅导员涉及自我倡导,舒适地质疑护理团队,强有力的支持系统,避免不相关的医疗信息.
- 所有参与者都希望在护理决策中积极参与,尽管激活水平各不相同.
结论:
- 通过提供及时,可访问和相关的信息和资源,可以增强患者的激活.
- 积极地让患者参与决策过程对于促进激活至关重要.
- 研究结果将为文化定制的干预措施提供信息,以促进患者的激活和共同决策.
相关概念视频
02:56Treatment Resistant Cancers
Cancer is the second leading cause of death in the United States. A cancer cell is genetically unstable and hence can mutate faster. They can also modify their microenvironment and escape immune surveillance. The difficulties in treating cancer are further compounded by the emergence of rapid resistance to anticancer drugs. The most common ways to attain resistance in cancer cells include alteration in drug transport and metabolism, modification of drug target, elevated DNA damage response, or...
02:50Combination Therapies and Personalized Medicine
Combining two or more treatment methods increases the life span of cancer patients while reducing damage to vital organs or tissue from the overuse of a single treatment. Combination therapy also targets different cancer-inducing pathways, thus reducing the chances of developing resistance to treatment.
The combination of the drug acetazolamide and sulforaphane is a good example of combination therapy to treat cancer. The cells in the interior of a large tumor often die due to the hypoxic and...
The combination of the drug acetazolamide and sulforaphane is a good example of combination therapy to treat cancer. The cells in the interior of a large tumor often die due to the hypoxic and...
01:21Health Literacy
Health literacy is an individual's or a community's capacity to comprehend, receive, read, and use relevant healthcare information and services. The World Health Organization (WHO, 2018) defines health literacy as the cognitive and social skills that determine the ability of individuals to gain access to, understand, and use information in ways that promote and maintain good health. As a result, the WHO helps individuals manage long-term health concerns, participate in preventative programs,...
01:13Patient-centered Care
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
01:27Nursing Ethical Principles II
Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's cancer...
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's cancer...
01:21Cancer Survival Analysis
Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...