公民在获取和共享健康信息时的选择 - 国际IMIA成员国国际调查
Camilla Hjermitslev1, Helen Monkman2, Julia Adler-Milstein3
1Department of Sustainability and Planning, Aalborg University, Denmark.
Yearbook of medical informatics
|April 8, 2025
概括
在全球范围内,公民对健康数据和处方信息的访问情况各不相同. 许多国家缺乏访问实验室结果和共享患者生成的健康数据的标准,经常报告数据泄露事件.
科学领域:
- 医疗信息学 医疗信息学
- 数字健康数字健康
- 患者数据管理患者数据管理
背景情况:
- 在健康信息学中,公民获取个人健康信息至关重要.
- 了解处方药信息和数据共享选项至关重要.
- 确保个人健康数据的安全性是一个关键问题.
研究的目的:
- 检查公民对实验室测试结果的访问权.
- 调查共享患者生成健康数据 (PGHD) 的选项.
- 评估获取处方药信息和电子健康安全的方法.
主要方法:
- 一项针对国际医学信息学协会 (IMIA) 成员国家的代表进行的调查 (n=28).
- 收集有关公民获取实验室结果,PGHD共享,药物信息和安全标准的数据.
- 对有关国家标准,培训和数据泄露的响应进行分析.
主要成果:
- 实验室结果的在线访问不同,有10个国家提供即时访问,有9个国家没有标准.
- 药物信息通常通过包装插件或药房印刷品提供;PGHD主要通过印刷或设备演示进行共享.
- 虽然大多数国家都有电子健康安全标准,但不到一半的国家要求卫生专业人员接受培训,16个国家报告数据泄露.
结论:
- 需要根据公民的需求改善公民对实验室结果的访问.
- 将数字PGHD整合到临床实践中需要进一步研究.
- 解决安全漏洞和标准化培训对于安全的数字健康至关重要.
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