利益相关者对开放健康数据的观点:一个跨部门分析
Rukshan Ranatunge1,2, Palitha Karunapema1, Pandula Siribaddana3
1Ministry of Health Sri Lanka.
Studies in health technology and informatics
|April 9, 2025
概括
在医疗保健中开放的数据共享正在获得引力. 虽然许多利益相关者缺乏对开放数据政策的了解,但大多数人支持匿名的健康数据共享,用于研究和改善医疗保健.
科学领域:
- 医疗信息学 医疗信息学
- 数据科学数据科学数据科学
- 科学政策 科学政策
背景情况:
- 开放式数据共享是科学界日益增长的概念,强调数据可重复使用和重新分配,限制最小.
- 医疗保健部门产生有价值的数据集,这些数据集可以显著有利于科学研究和公共卫生成果.
研究的目的:
- 评估利益相关者对医疗保健领域开放数据共享的认识和态度.
- 了解与实施健康数据集开放数据门户相关的潜在好处和挑战.
主要方法:
- 利益相关者是使用均的便利抽样来确定的.
- 分发了问卷以收集有关开放数据概念和政策的知识和意见的见解.
主要成果:
- 超过50%的参与者对开放数据概念,法规和政策的知识有限.
- 大多数利益相关者表示支持共享匿名健康数据和访问此类数据集.
结论:
- 尽管存在知识差距,但利益相关者之间对开放的健康数据共享有很大的支持.
- 开放数据门户可以提高透明度,促进科学理解,最终导致更好的医疗保健结果.
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