评估家庭护理人员对数字干预的需求,以支持受精神分裂症影响的家庭
Ana R Conde-Moro1, Silvia Quer-Palomas1, Ricardo C Berrios1
1Adhera Health, Santa Cruz, California, United States.
Studies in health technology and informatics
|April 9, 2025
概括
对精神分裂症患者的家庭照顾者需要更好的支持. 以用户为中心的数字干预,结合教育和自我照顾,有望改善护理人员的福祉和参与.
科学领域:
- 精神病学和心理健康 精神病学和心理健康
- 数字健康干预措施 数字健康干预措施
- 护理人员支持护理人员支持
背景情况:
- 精神分裂症患者的家庭照顾者经历了相当大的身体,情感和财务负担.
- 现有的家庭干预措施面临着诸如耻辱和有限的可访问性等障碍.
- 移动健康 (mHealth) 提供了提供心理社会支持的潜在解决方案,但在长期用户参与方面存在困难.
研究的目的:
- 了解精神分裂症患者家庭护理人员的具体需求.
- 为开发以用户为中心的数字干预提供信息,以适应护理人员的要求.
- 确定一个有效的数字支持工具的关键组件.
主要方法:
- 利用了参与式研讨会,涉及护理人员,精神分裂症患者和医疗保健专业人员.
- 收集了有关护理人员挑战,支持需求和对数字解决方案的偏好的见解.
- 评估了一项拟议的数字干预措施的接收情况,该干预措施将教育内容和自我护理活动整合在一起.
主要成果:
- 护理人员需要基于证据的精神分裂症教育和增强的沟通策略.
- 发现的关键挑战包括困惑,孤独和压力,特别是在照顾者的早期阶段.
- 拟议的数字干预,包括教育模块和自我护理组件,收到了积极的反.
结论:
- 以用户为中心的数字干预可以解决精神分裂症患者家庭护理人员的关键需求.
- 非常重视了解疾病,法律方面和经济援助的教育内容.
- 整合支持小组连接和当地活动信息,提高了数字工具对护理人员的实用性.
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