由于阿尔茨海默病而导致轻度认知障碍的护理人员负担 - 一项纵向研究
Margarida Rebolo1, João Maroco2, Alexandre de Mendonça1
1Faculdade de Medicina, Universidade de Lisboa, Lisbon, Portugal.
概括
由于阿尔茨海默病 (AD) 的轻度认知障碍 (MCI) 的护理人员负担很大,并且随着时间的推移而增加. 没有任何基线因素预测了这种进展,突出显示了对这些护理人员有效支持策略的未来研究的需要.
科学领域:
- 神经科学是一个神经科学.
- 老年学是一门学科.
- 心理学 心理学 心理学
背景情况:
- 轻度认知障碍 (MCI) 患者的护理人员经历了显著的护理人员负担.
- 最近的进展允许在MCI患者中可靠地诊断阿尔茨海默氏病 (AD),从而可以通过抗粉样蛋白疗法进行早期干预.
- 了解护理人员负担对于支持因AD而患有MCI的患者至关重要.
研究的目的:
- 为了检查因AD而患有MCI的患者的护理人员负担.
- 描述随着时间的推移,护理人员负担的纵向变化.
- 为了确定基线护理人员和患者的因素,可以预测护理人员负担的进展.
主要方法:
- 一组由25名因AD而被诊断患有MCI的患者-护理人员二合一从一个记忆诊所招募.
- 使用Zarit负担清单 (ZBI) 评估了护理人员的负担.
- 其他措施包括生活满意度,抑郁症状 (CES-D),焦虑 (STAI) 和患者神经精神症状 (NPI).
主要成果:
- 基线ZBI得分平均为24.5,与护理人员的痛苦和患者的神经精神症状相关.
- 在平均17.7个月的随访期间,ZBI分数显著增加至31.4 (P < 0.001).
- 没有发现基线护理人员或患者特征可以预测护理人员负担的增加.
结论:
- 由于AD而患有MCI的患者的护理人员经历了相当大的和不断升级的负担.
- 需要进一步的研究来确定负担进展的预测因素.
- 制定降低护理人员负担的策略对于提高护理质量至关重要.
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